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    #Hashtag Hong Kong

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    Listen to #Hashtag Hong Kong every Sunday morning at 8.15

    Focussing on issues affecting civil society, we'll hear from representatives of NGOs, associations, statutory bodies, and non-profit groups.

    (Sundays 8.15am - 8.25am)



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    24/03/2024
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    Erica Lee, Director, The Hong Kong Down Syndrome Association

    Hello, I am Erica Lee, the director of the Hong Kong Down Syndrome Association, and thank you for tuning in today. It is truly a pleasure to have the opportunity to share with you on this significant occasion—World Down Syndrome Day 2024 on 21st March.

     

    As we gather here to celebrate WDSD, it is essential to reflect on the journey of individuals with Down syndrome and the challenges they face in our society today. Down syndrome, a genetic condition caused by the triplication of the 21st chromosome, presents a variety of abilities and challenges for those affected. Despite significant progress in raising awareness and promoting inclusion, people with Down syndrome continue to encounter barriers to full participation in society.

     

    Here in Hong Kong, based on the latest figures searched by the Hospital Authority, it is estimated that there are 2,900 – 3,000 persons with Down Syndrome in Hong Kong, by the end of 2021. In the case of the HKDSA serves around 1,000 members between 7 months to 63 years old. Only a few of the adult members are openly employed; the rest either work in sheltered workshops, are unemployed, or receive other kinds of day services. 

     

    The community has often underestimated the needs of minorities. In reality, not only do people with Down syndrome need support, but their families and caregivers also require help. Our mission is simple yet profound: to empower and uplift those affected by Down syndrome through integrated family support and vocational rehabilitation services, and comprehensive support networks from prenatal to newborn support.

     

    However, despite our commitment, the road ahead remains challenging. One of the most pressing issues faced by individuals with Down syndrome is limited job opportunities. Given their potential and willingness to contribute, many still face discrimination in the workplace, often from their colleagues rather than their employers, to our surprise. Many people with Down syndrome struggle to find long-term employment opportunities that match their abilities. This disparity not only affects their financial independence but also their sense of dignity and self-confidence.

     

    On the other hand, people with Down syndrome now live to the age of 60 or even 70s, which means that their parents are more often elderly causing the phenomenon of “Elderly doubletons families”. Although they have a longer life expectancy, it is common for them to experience “early ageing” starting at the age of early 30s, meaning that they experience certain conditions that are common to typically ageing adults, in the area of medical, physical and functionally. Early and doubled ageing will bring unexpected challenges for which adults with Down syndrome, their families and caregivers may not feel adequately prepared.

     

     

     

    Now, you may wonder whether the resources allocated to support people with Down syndrome are adequate. The reality is that while progress has been made, there is still much work to be done. Greater support in childhood education, healthcare, and social services is needed to ensure that people with Down syndrome have access to the resources and support they need to thrive. Additionally, specialized teaching techniques and professionals must be trained to address the learning difficulties faced by individuals with Down syndrome, yet this remains a challenge due to limited resources in Hong Kong.

     

    As we continue to advocate for the rights of people with Down syndrome, you may ask how we can make Hong Kong a better place for them. It starts with fostering a culture of inclusion and acceptance. We must challenge stereotypes and misconceptions about Down syndrome, promoting a society where diversity is celebrated, and everyone is valued for their unique contributions.

     

    Advocating for policies and initiatives that promote equal opportunities is crucial. This includes efforts to increase employment opportunities, improve healthcare services, and enhance educational support for children and adults with Down syndrome. Most importantly, we must listen to their voices and involve them in decision-making processes that affect their lives. They need our support to build an inclusive and equal society for all, accepting who they are and welcoming them as part of the community.

     

    End The Stereotypes - the theme of World Down Syndrome Day 2024, let us recommit ourselves to building a world where people with Down syndrome can live their lives to the fullest, free from discrimination and stereotypes. Regardless of ability, everyone has an opportunity to thrive and reach their full potential because everyone is unique and should be respected for who they are. I dedicate the song 'This is Me' (by Keala Settle) to all of you.

     

    Thank you for your attention and support.

     

    24/03/2024 - 足本 Full (HKT 08:15 - 08:30)

    24/03/2024 - Erica Lee, Director, The Hong Kong Down Syndrome Association

    重溫

    CATCHUP
    01 - 03
    2024
    RTHK Radio 3

    24/03/2024

    Erica Lee, Director, The Hong Kong Down Syndrome Association

    17/03/2024

    Christina Lee, Director of Wofoo Social Enterprises

    10/03/2024

    Joe Lo, Convenor of The Long Term Tobacco Policy Concern Group

    03/03/2024

    Fiona Nott, CEO of The Women's Foundation

    25/02/2024

    Innocent Mutanga, Founder and CEO of Africa Center Hong Kong

    18/02/2024

    Professor Edwin Ho, Amyotrophic Lateral Sclerosis (ALS) researcher in the School of Life Sciences at The Chinese University of Hong Kong.

    04/02/2024

    Bobo Choy, the curator of Kong Temporary Archive

    28/01/2024

    21/01/2024

    Dr. William Yu, Chief Executive Officer of World Green Organisation
    X

    Erica Lee, the Director of The Hong Kong Down Syndrome Association

    World Down Syndrome Day (WDSD) , 21 March, is a global awareness day which has been officially observed by the United Nations since 2012. The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. This extra genetic material causes the developmental changes and physical features of Down syndrome.

     

    Down syndrome varies in severity among individuals, causing lifelong intellectual disability and developmental delays. It's the most common genetic chromosomal disorder and cause of learning disabilities in children. It also commonly causes other medical abnormalities, including heart and gastrointestinal disorders. Better understanding of Down syndrome and early interventions can greatly increase the quality of life for children and adults with this disorder and help them live fulfilling lives.

     

    The Hong Kong Down Syndrome Association is committed to serving individuals with Down Syndrome, intellectual disabilities or other disabilities and their family members with integrated family support and vocational rehabilitation services. As an organization dedicated to serving people with Down syndrome and their families, we deeply understand that for expectant parents who are suspected of having a fetus with Down syndrome or parents who have just given birth to a newborn baby with Down syndrome, they will encounter a critical period full of hesitation, confusion and doubts. Through our Pre-natal & New Born Counselling & Support Service for Parents of Babies with Down Syndrome, we actively provide these parents with comprehensive information and appropriate emotional support.

     

    Let me share a life story with you. 

     

    The parents contacted us after the birth of their daughter Esther in 2016.  During the various pregnancy check-ups, they were told repeatedly that there were high risks of carrying a fetus with Down Syndrome.  At first, the parents were shocked by the persistence from the medical professionals despite having communicated their decision to continue with the pregnancy. Esther’s parents were very positive and accepted the fact she would be born with special needs. They said, “She is a gift from God. Down Syndrome does not define who she is, she is a precious child first!”

     

    As the parents were not familiar to the rehabilitation services in Hong Kong, our social worker shared lots of useful information with them. For example, the importance of Child assessment, the application procedures for social welfare and the importance of early intervention to newborn babies with Down Syndrome, etc.  Esther was born premature and also confirmed having congenital heart defect soon after birth.  She was admitted to PICU for some time in infancy.  Our social worker had also provided counselling and psychological support services to them. Early intervention training was provided to enhance her development in muscle, cognition, language and social skills. They were deeply touched by the support and care from the association to the family still now. 

     

    Esther is nearly 7 years old now and is studying in a primary school since last September.  She is sociable at school and is coping well with her primary school life.  The parents shared that Down Syndrome does not define who the person is. Some people may find it difficult, but don’t forget that there is a community with a big heart that is willing to help, care and accept.

     

    It’s deeply true that everyone has their strengths and weaknesses, and people with Down Syndrome need more acceptance. Individuals with Down Syndrome have the right to social resources, and also the responsibility to contribute to society. They are capable of working as long as employers give them the opportunity. If you are willing to accept and embrace people with Down Syndrome, they can also have a happy and meaningful life just like you and me!

     

    Do you want to get involve to raise the awareness on Down Syndrome? It couldn’t be easier! As I mention in the beginning, most people with Down Syndrome carry an extra one at their 21st pair of chromosomes. The shape of socks is like a chromosome. This condition, then is just like a pair of colorful mismatched socks. The odd pair of socks may be a different pattern or color but can still be worn together and form a colorful picture! On the coming 21 March, the World Down Syndrome Day, all you need to do is to wear mismatched socks or most colourful socks that are going to get noticed. To represent the beauty of diversity, possibility, inclusion and a new perspective of seeing things on this special day, and also to raise the public concern to people with Down Syndrome together!

     

    May we live in a society without prejudice, where everyone can enjoy equality, love

    and, friendship.

    I’d like to dedicate this song to the listener and all our members...“This is Me…”

     

    RTHK Radio 3

    19/03/2023 - 足本 Full (HKT 08:15 - 08:30)

    19/03/2023 - Erica Lee, the Director of The Hong Kong Down Syndrome Association