Maggie Lee, Executive Director of Hong Kong Alzheimer's Disease Association

“File does not exist” …….

“This file is corrupted and cannot be opened” …….

These may be common problems in our daily computer use.

Then how about the brains of people with dementia? Memory and the files in their brain are always broken and difficult to recall.

 

Dementia is a degenerative disease of the brain. The deterioration usually starts very slowly, being forgetful at first. Eventually, it can develop into obvious memory loss, inability to self-care, being lost, not recognising loved ones and forgetting important moments in life.

 “Who are you?”, “Where am I?” are heartbreaking questions but repeated by people with dementia at every moment. Please remember, Dementia is not normal ageing, but a disease that causes memories to fade from the recent to distant past.

 

In Hong Kong, about 10% of people over the age of 65 live with dementia, and over the age of 85 is as high as one-third. We all know that Hong Kong is facing an ageing population and the prevalence of dementia will sharply increase. There are currently about hundred and fifty thousand people living with dementia in Hong Kong. The number will double in the next 15 years. However, is Hong Kong ready for the silver tsunami?

 

The development of a comprehensive plan for dementia care by our policymakers would be the crucial way out for our future. Countries or cities around us, such as China, Macau, Singapore, and Japan, have already developed national plans to prepare society for the challenges. But we are still in its infancy.

 

“Never too Early, Never too Late” is the theme of World Alzheimer’s Month this year. We aim to arouse everyone’s importance on risk reduction in delaying and potentially preventing the onset of dementia. I think policy planning should also be “never too early, never too late”, We need to take action before family caregivers, and our health and social care systems collapse.

 

Different interventions are effective in dementia management. It is imperative to grasp the golden opportunity in the earliest stage. Unfortunately, the diagnostic rate of dementia has remained at only 10% for the past few decades. That means the majority of the people living with dementia are still without proper interventions and support.

 

 

Memory problems in the early stage can easily be mistaken as signs of normal ageing. Neither the people with dementia nor their families and friends realize it until more obvious problems happen in their daily lives.  Moreover, family size in Hong Kong is getting smaller and there are more and more childless couples, early symptoms may go unnoticed if people do not interact closely in day-to-day life.

 

Public education to increase awareness of early signs of dementia, easily accessible diagnostic services, and shorten waiting time, all of these should be put into action.

 

Dementia is referred to as the “long goodbye”, our beloved seems to be becoming a stranger slowly. In my 20 years of walking with families, I know too well how frustrating it can be when a loved one has dementia. But I keep encouraging the families to appreciate what our beloved can still do and remember, and try to keep them for as long as possible. We may worry about the next deterioration coming, but while waiting for the future, what deserves more attention is the current him/her.

 

If you or your beloved are living with dementia, don’t give up. Drugs can help. Different brain-stimulating activities and caring techniques can ease the symptoms or slow down the deterioration. Equipment and technology can help to make life easier. We are here to walk through it with you. You are not alone, just let us know.

 

If you are healthy, congratulations, but remember “Never too early, Never too late”, take actions to reduce the risk factors of dementia. A healthy lifestyle, regular exercise, healthy and balanced diet, stay mentally and socially active. All these can help. Please remember to use and keep your brain active or you will lose it.

 

September is World Alzheimer’s Month, an international campaign initiated by Alzheimer’s Disease International (ADI) to raise awareness and remove the stigma of dementia. As the sole member of ADI in Hong Kong, we invite you to join us in caring about the brain health of your families, neighbours and friends, supporting those living with dementia around you and seeing if we can help.

 

Finally, I’d like to dedicate the song “I'm Not Gonna Miss You” by Glen Campbell to all people with dementia and their caregivers. The disease may take the memory, but not of the love you share and cherish.