Listen to #Hashtag Hong Kong every Sunday morning at 8.15
Focussing on issues affecting civil society, we'll hear from representatives of NGOs, associations, statutory bodies, and non-profit groups.
(Sundays 8.15am - 8.25am)
Hello, I am Erica Lee, the director of the Hong Kong Down Syndrome Association, and thank you for tuning in today. It is truly a pleasure to have the opportunity to share with you on this significant occasion—World Down Syndrome Day 2024 on 21st March.
As we gather here to celebrate WDSD, it is essential to reflect on the journey of individuals with Down syndrome and the challenges they face in our society today. Down syndrome, a genetic condition caused by the triplication of the 21st chromosome, presents a variety of abilities and challenges for those affected. Despite significant progress in raising awareness and promoting inclusion, people with Down syndrome continue to encounter barriers to full participation in society.
Here in Hong Kong, based on the latest figures searched by the Hospital Authority, it is estimated that there are 2,900 – 3,000 persons with Down Syndrome in Hong Kong, by the end of 2021. In the case of the HKDSA serves around 1,000 members between 7 months to 63 years old. Only a few of the adult members are openly employed; the rest either work in sheltered workshops, are unemployed, or receive other kinds of day services.
The community has often underestimated the needs of minorities. In reality, not only do people with Down syndrome need support, but their families and caregivers also require help. Our mission is simple yet profound: to empower and uplift those affected by Down syndrome through integrated family support and vocational rehabilitation services, and comprehensive support networks from prenatal to newborn support.
However, despite our commitment, the road ahead remains challenging. One of the most pressing issues faced by individuals with Down syndrome is limited job opportunities. Given their potential and willingness to contribute, many still face discrimination in the workplace, often from their colleagues rather than their employers, to our surprise. Many people with Down syndrome struggle to find long-term employment opportunities that match their abilities. This disparity not only affects their financial independence but also their sense of dignity and self-confidence.
On the other hand, people with Down syndrome now live to the age of 60 or even 70s, which means that their parents are more often elderly causing the phenomenon of “Elderly doubletons families”. Although they have a longer life expectancy, it is common for them to experience “early ageing” starting at the age of early 30s, meaning that they experience certain conditions that are common to typically ageing adults, in the area of medical, physical and functionally. Early and doubled ageing will bring unexpected challenges for which adults with Down syndrome, their families and caregivers may not feel adequately prepared.
Now, you may wonder whether the resources allocated to support people with Down syndrome are adequate. The reality is that while progress has been made, there is still much work to be done. Greater support in childhood education, healthcare, and social services is needed to ensure that people with Down syndrome have access to the resources and support they need to thrive. Additionally, specialized teaching techniques and professionals must be trained to address the learning difficulties faced by individuals with Down syndrome, yet this remains a challenge due to limited resources in Hong Kong.
As we continue to advocate for the rights of people with Down syndrome, you may ask how we can make Hong Kong a better place for them. It starts with fostering a culture of inclusion and acceptance. We must challenge stereotypes and misconceptions about Down syndrome, promoting a society where diversity is celebrated, and everyone is valued for their unique contributions.
Advocating for policies and initiatives that promote equal opportunities is crucial. This includes efforts to increase employment opportunities, improve healthcare services, and enhance educational support for children and adults with Down syndrome. Most importantly, we must listen to their voices and involve them in decision-making processes that affect their lives. They need our support to build an inclusive and equal society for all, accepting who they are and welcoming them as part of the community.
End The Stereotypes - the theme of World Down Syndrome Day 2024, let us recommit ourselves to building a world where people with Down syndrome can live their lives to the fullest, free from discrimination and stereotypes. Regardless of ability, everyone has an opportunity to thrive and reach their full potential because everyone is unique and should be respected for who they are. I dedicate the song 'This is Me' (by Keala Settle) to all of you.
Thank you for your attention and support.